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Hi everyone- my name is Erin and my son Cade just turned 18 yrs old this month (graduating in 3 weeks!) and we live in Pennsylvania in the US. He has PFIC 2 and been on every medicine (not the new IBAT inhibitors), had both an internal and external biliary diversion (PEBD for 15 years!), and he was transplanted at the Children’s Hospital of Philadelphia (CHOP) during COVID in late September 2020. He is doing very well. I am so happy to be here and share and listen and hopefully point people in the right direction:)!
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